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Tubies Are Strong: 10 Facts About Feeding Tube Users

Feeding tubes are often misunderstood. People see a tube and immediately make assumptions—fear, pity, or judgment—but tubies are thriving, resilient, and strong. This blog is for anyone who wants to understand what tubies really represent and why they deserve respect and celebration.


Fact 1: Tubies are everywhere.


Feeding tubes are not rare. People of all ages—infants, children, adults, and seniors—rely on them for a wide range of medical reasons. Prematurity, neurological differences, GI disorders, cancer, and feeding disorders are just a few of the conditions that may require tube feeding.


Fact 2: Most tubies can eat by mouth.


Around 80% of tube-fed individuals can eat some foods orally. Tubes supplement what the person can’t safely get by mouth—they don’t replace eating entirely.


Fact 3: Tubies are strong and resilient.


Managing a feeding tube takes vigilance, energy, and skill. Pump alarms, overnight feeds, therapy appointments, and medical procedures are all part of life for tubies—and they handle it every day.


Fact 4: Tubes are lifesaving.


Feeding tubes are not optional or “extra.” They are essential for growth, healing, and survival. They give energy to play, learn, and thrive.


Fact 5: Tubies can still enjoy meals.


Tube-fed individuals often participate in family meals, snacks, and oral feeding therapy. Feeding tubes do not take away joy—they often make it safer and less stressful.


Fact 6: Tubies are not “broken.”


A feeding tube is a tool, not a limitation. It doesn’t define health, independence, or success. Tubies are just people getting the support they need to live fully.


Fact 7: Tubes give families freedom, not restrictions.


Though it may seem complicated, tube feeding can reduce stress and worry around nutrition and mealtimes. It allows families to focus on connection, play, and growth, rather than constant pressure to eat orally.


Fact 8: Tubies experience the full range of emotions.


Tube-fed individuals and their caregivers experience joy, frustration, grief, and triumph. Feeding tubes are emotional, yes—but they are also full of life, love, and possibility.


Fact 9: Tubes can be temporary or long-term.


Some tubies need tubes for a season, while others rely on them for life. Both paths are valid. A tube working as intended is a sign of success, not failure.


Fact 10: Visibility matters.


Feeding tubes save lives, but stigma still exists. Awareness weeks, stories, and education help normalize tubes, celebrate tubies, and remind families they are not alone.


Tubies are not defined by the tubes they use—they are defined by their strength, courage, and resilience.


This week, and every week, let’s honor tubies. 💜


If you see a tube, see strength.

If you see a pump, see life.

If you see a family navigating tube feeds, see love in action.

 
 
 

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